For several years, I had been living in a tunnel—one lined with appointment reminders, medication schedules, and constant reminders of my condition.
MS has a way of quietly becoming the main character in your life, even when you never intended it to. I thought I was doing the right thing by focusing all my energy on managing it. I wanted to stay ahead of the curve and fight it with everything I had.
Somewhere along the way, I stopped living and started merely managing.
Then something changed. I went on a family trip.
It wasn’t a bucket-list getaway, a fancy resort, or a spiritual retreat. It was time with my grandson. What I witnessed during those days shook me awake more than any medication or motivational speech ever could.
I watched him discover fireflies for the first time.
To him, those tiny glowing insects were magic. Every evening, as the sun dipped below the trees, he waited with complete joy and anticipation for the first flicker of light. When it came—when the fireflies danced across the yard—he chased them with laughter so pure that it cracked something open in me.
He didn’t care about anything except the moment.
A day or two later, I watched his eyes light up again as he discovered the wonder of a caterpillar becoming a butterfly. He wasn’t rushing, scrolling, or planning what came next. He was simply present.
I realized how much I had lost in my own chasing: chasing laboratory results, answers, and control. In doing so, I had stopped chasing the fireflies.
MS is still part of my life. That has not changed. But it is not all of my life.
I want to live again—not simply exist between appointments. I want to feel wonder, sit in the backyard at dusk, and witness the world through the eyes of a child.
That moment reminded me that healing is not always about fighting harder. Sometimes it is about softening—becoming still enough to see what is already in front of you.
Sometimes healing means letting go of the need to fix everything and allowing yourself to be amazed again.
Just like my grandson, waiting for the fireflies.
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